About the Treat neurogenic OH Now Coalition
The Treat neurogenic OH Now Coalition is a group of patients, caregivers, advocacy organizations, and health care providers advocating for more options to treat neurogenic orthostatic hypotension (neurogenic OH or nOH). Via this website, Facebook, and Twitter the Coalition provides a forum for concerned individuals to share information and resources as well as raise awareness about this rare but debilitating condition. Through its advocacy, the Treat neurogenic OH Now Coalition seeks to advance the development and approval of new treatments for neurogenic OH.
Currently, few treatment options exist for the more than 100,000 patients in the U.S. who suffer from neurogenic OH. The Treat neurogenic OH Now Coalition is dedicated to building alliances among patients, caregivers, health care providers, patient advocates, lawmakers and the FDA to address the unmet needs of those afflicted with neurogenic OH. This website provides the platform to engage decision-makers and to mobilize supporters. Patients can share their stories about their challenges of living with the symptoms of neurogenic OH, while educating the FDA and government officials about the urgent unmet need for new treatment options.